A British organization, Cardiac Risk in the Young, was established in 1995 to raise awareness of conditions that can lead to young sudden cardiac death. In the video found on this page, posted earlier this year, a consulting physician does an excellent job explaining Brugada Syndrome. Near the end, he discusses some things that patients should be aware of and avoid, in order to lessen the probability of a cardiac event.
He mentions the family of tricyclic antidepressants as being dangerous to the Brugada Syndrome patient and also warns patients to monitor their body temperature, as fevers are associated with increased probability of having a cardiac event if one has Brugada Syndrome.
Most patients with Brugada Syndrome know that it's primarily a passive condition, with no symptoms. Other than the inconvenience of having and maintaining an ICD, the typical healthy patient leads a normal life. It's easy to forgot how serious this condition is!
So, the wise patient keeps up with the literature on the syndrome. Since Brugada Syndrome is so rare, progress seems to move at a snail's pace. But every once in a while, an article, video, interview or event is discovered to help patients learn more about it, and this helps them manage their own lives and feel more in control of their own health and futures.
